A Brief Timeline Of My Health Issues (Day 5)

Going to go into this much more in-depth. This is a small picture of what’s going on health wise. I swear I had like two 3-4 months breaks for the past 7-8 years.

Pots Middle School

Felt like passing out all the time and would pass out in class.

Now considered an autoimmune disease and tightly correlated with gut issues.

Crohn’s Starts/Horrible Symptoms

My Crohn’s has always been unique in that I will get every symptom imaginable before I have any clear gi symptoms.

Symptoms started in high school…

Severe cystic acne which is clearly inflammatory (thankfully only on the body not the face), severe depression, joint pain, weird chills through my body, insomnia, unable to gain weight, extreme fatigue, brain fog, etc.

Gi Symptoms Go From Zero to Insane

Halfway through college my already bad fatigue got insane. Like I couldnt get out of bed.

I thought it was severe depression but no it was just inflammation off the charts.

Then towards the end of college GI symptoms of Crohn’s finally started for the first time ever.

Dirrihea. First 15-20 then quickly to 30+. Eventually 50+ if I didn’t use opiates. Become a case study. One of the worst cases of Crohn’s in the US.

Extreme pain and discomfort always. Won’t go into details now but just know when I woke up every day eventually my body would instantly have a panic attack as it knew extreme pain was coming. Also was basically bed bound from fatigue. Slept at least 14-15 hours a night.

Just one step away from actual torture for 2 years and literally prednisone which kept me up for 6 days at a time was a great relief as it was the only thing that ever worked.

Tried everything natural every diet. Water would literally be pure pain going through me. Fasted for weeks at a time.
when id eat I’d literally be punching the wall mad at myself the pain was so bad.

All doctor Crohn’s treatments failed too.

Emergency colon removal

Let’s jump ahead after 2 years of insanity I barely even touched in this outline. Will need 5-10k words to really explain.

Anyways, weighed like 84 pounds. Always shitting blood. Time to remove my colon baby. Partied hard the day before surgery. Haha legend.

J pouch surgery. Very very intense. Takes over a year to do 3 parts then a year of recovery. Unfortunately my experience was significantly more intense than the already high bar as I had internal bleeding in part three. They openly said it had a high chance of killing me and may have at least set the tone for my bladder issues.

Then I had to have the most intense surgery of my life when they pulled out the blood drain and I had a full blockage and 2nd pulmonary embolism. Couldn’t move onto my side for weeks.

This is when the PTSD started. A change in light would trigger anxiety. I couldn’t interact with anyone, developed ticks etc.

Couldn’t feel anything. Got suicidal.

Severe opiate withdrawal

Since I was in such extreme shape literally on 200+ mg of oxycodone a day for over 6 months.

Trying to quit was like holding a plank while feeling always out of breathe while feeling the worst feeling of my life and restless legs so bad I couldn’t last 20 minutes without fucking wanting to actually saw my legs off.

Kept trying. Eventually got off. Took a sub once in the hospital after a month and a half unsuccessful getting off, making it to days 2-4 but always giving in. That sub was just enough to push me through. And so I stayed up for 4 days standing hunched over puking and shitting endlessly etc taking calls from all my bros. My friend was in ATL partying and was going to come with liquor and girls to the hospital haha.

One of the biggest achievements of my life. Severe opiate withdrawal while dealing with severe PTSD and recovering from very intense surgery.

Functional Medicine

Alternative medicine I cover in my autoimmune protocol.

My dad was dubious but I improved significantly.

Unfortunately during this period I had significant physical issues due to surgeries and had 5-6 more pretty intense surgeries.

Before I even get to the last surgery, enter the 2nd worst day of my life.

Urinary Tract Infection Start And Don’t Stop

Literally on January 1st I’m watching a Ford movie with my dad and my girl. I go to piss and realize I can’t.

And such begins a hell I haven’t been able to escape and is so damn rare it’s almost unbelievable. The nightmare begins and holy god actually turned out worse than the fucking Crohn’s nightmare.

Anyways first uti was worst cause doctors said it was impossible so didn’t treat until holy god it was just pure blood coming out and top 3 most painful experience of my life.

I go to the hospital and they give me pain meds and ketamine for some reason. So I’m tripping on K with this insane infection. They’d never seen E. coli levels this high before they tell me.

They give me Bactria but it’s immune. Then cipro which causes servere allergy side effects.

Bro I did not sleep for 5 days. Wanted to die.

Long king story short. Kept having UTIs constantly since that first one and all the natural treatments like d mannose didn’t do shit.

Got an expert in my condition due to GoFundMe.

Gentinicj treatment went well at first then cursed by false passages which would never end. My god I could write 10k words about this just like Crohn’s.

Hell. Literally hell. Stuck in the toilet always. Still working out though.

Got to the point felt like I had to piss so bad and if I did just droplets, extreme pain, lose the urge for a few seconds then back to feeling like I have held my piss for 2-3 hours. This happens constantly for a year with worse pain then Crohns.

Then a Crohn’s under control gets messed up by the triggers of infection and antibiotics.

Gets so bad have to be on antibiotic every day. So much pain. Kratom every day.

Then try subraphbic catheter to put in medicine. Horrible pain with bladder spasms every day plus bladder pain and Crohn’s pain. Eventually fails. IV antibiotics for 10 days in hospital and I have a uti in a week later. Holy God.

I know I’m going to die and thus spazz out. Now I have two severe conditions and very little hope. So much pain. I have so much pain in me that no one understands. I fought it like a soldier but without hope I gave up. Started abusing drugs just like I did when it seemed ide die of Crohn’s. Never opiates though.

Abcesses and fistulas. Inflammation so high can’t even then on the shower my wrist hurt so bad. Every joint hurt and coller bone so inflamed it pokes out very noticeably.

Life ruined, find it hard to care though I do try and I do do things that I can with all that pain.

At the same time my Crohn’s is insane from being on an antibiotic for so long and I realize I have a tapeworm making things significantly worse.

Steroids then benzos using Kratom here and there getting surgeries here and there. It’s all a blur.

Phage Therapy – My Last hope

Won’t go too much into this because it’s ongoing and I will write and in depth article soon.

Worked but a new biofilm popped out on urine test. Back on antibiotic. Pain and feel horrible without antibiotic blood comes out my penis and it hurts.

Life, Am I Right?

As I’ve said I have a plan now to get out of this and find solace.

I could divide this outline into a 250 page book of stories and I’ll share. This website will be insane.

God deliver me. I will accept the suffering but make it for something.

I am learning to deal with this no matter what. But there is a good chance the phage will be a success.

What a crazy life. Always made the most of it until I gave in and as mentioned in previous posts spread my hurt. Forgive me and know I am a Man now. I a reborn and will be reborn more.

A hard road is no excuse. Time to ducking own whatever happens like a man. I’m a super hero bro. And God is on my side the moment I called him. Christ is in my life. I have strength beyond comprehension. This only strengthened me. Recent events so hard, I wouldn’t change it because it made me realize so much.

Life is beautiful. Always. Thank you for everything God. Please grant me the strength to build up again and eventually have a beautiful family.